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Thursday, July 24, 2008

Not much to say....

We haven't posted in a while and that's mostly because life has been pretty quiet for us. We've kept busy but mostly just swimming at Tante Nen-Nen's pool and swim lessons. We play A LOT of trains and mommy tends to want to stay inside during these super hot days.

We haven't said much on the blog about the situation with the baby, mostly because I've wanted to keep this just for all the happy news. There really isn't much new to tell in that area. We have gone back to see another specialist to ask some more questions and get a better understanding of what is in store for us. We don't have any good news, just some more answers. My doctor has said that she would induce a few weeks early, which would put us right around the first of September. So at most, we have about 6 weeks left.

Based on our meeting with the specialist, we are going to try to meet with the neonatal department at the hospital where we will deliver to try to understand some of the very difficult decisions we will be asked to make at delivery. We will also go ahead and have the amnio done, just to confirm exactly what the issue is with the baby, to confirm that it is Trisomy 13. It's one less thing we will have to test after she arrives. Finally, we may go to a pediatric cardiologist to have him look at the heart defect to determine how severe it is. This is something we are still discussing.

I realize posting in a blog about this may seem a bit.... cold? But we also know how many of you care and in some ways it's easier to distribute the information this way rather than repeat the story so often. We have come to realize that this will be even harder than we thought it was going to be.... and it's really not something we ever even imagined having to face.

Thank you all again so much for your love and support. Please keep us in your thoughts and prayers as we are certainly going to need them. We love to see and hear from all of you. All our love.

1 comments:

Matich and Amber said...

We appreciate the updates. Love you guys!